2. SVĚTOVÁ KONFERENCE O CDG
2.SVĚTOVÁ KONFERENCE O CDG
se uskuteční 28. až 30.8. 2015 v Lyonu ve Francii
REGISTRACE JE ÚSPĚŠNÁ, MÍSTA JSOU OMEZENÁ!
Zajistěte si svou účast na - 2 Světové konferenci o CDG “SSIEM Official Satellite Symposia – Second World Conference on Congenital Disorders of Glycosylation (CDG): a challenging story of sugar trees” - která se uskuteční ve dnech 28.-30.8.2015 v Lyonu ve Francii.
· Více než 40 mluvčích potvrdilo svou účast!
· Oficiální internetové stránky: https://www.ssiem2015.org/
· Místo konání konference: Domaine Lyon Saint Joseph at 38 allée Jean Paul II, 69110 Sainte Foy lès Lyon. Více na: https://www.seminaires-lyon.eu/en/location-salle-seminaire-lyon-2
· Info:
o Registrace:
o Uzavření registrací: 23. dubna 2015
o Vyplněný registrační formulář zašlete na: worldconferencecdg2015@gmail.com
o Informativní schůzka rodin: 28. srpna 2015
o Konference pro rodiny a odborníky: 29. a 30. srpna 2015
· Ubytování: každý účastník je zodpovědný za své ubytování. V případě zájmu, místo konání konference, nabízí ubytování, které je vhodné pro naše potřeby. K dispozici je několik volných pokojů.
Po přijetí Vaší registrace s potvrzením o platbě, obdržíte své registrační číslo, které můžete předat hotelu, v případě, že budete chtít zjistit dostupnost pokojů (v Domaine Lyon Saint Joseph).
· Privátní parkoviště: Nedaleko je i soukromé parkoviště, které je k dispozici zdarma pro účastníky konference
PROGRAM KONFERENCE: PROGRAM.pdf (669,1 kB)
PŘIHLÁŠKY RODINY: Families_Registration_WCCDG_2015_FV.docx (154338)
PŘIHLÁŠKY OSTATNÍ: Participants_Registration_WCCDG_2015-FV.docx (142699)
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“The 2nd World Conference on Congenital Disorders of Glycosylation for Families and Professionals
Official announcement
When? 29 and 30 August 2015
Where? Lyon (France)
Venue and tentative agenda will be announced soon.
Do you know families affected by Congenital Disorders of Glycosylation (CDG)?
Your medical doctor is following up CDG families?
If yes, please inform them about this family and professional oriented conference!
Reasons to attend
- Engage in meaningful discussions with the ones that experience CDG in their daily lives
- Knowledge sharing & Empowerment
- Gain insights into new breakthroughs in the CDG field
- To forge partnerships with main stakeholders who addressed the same concerns
- Being surrounded by inspiring and courageous people
- Shaping basic and applied research based on CDG community concerns and needs
- Networking Promotion
- Identify and assess current CDG challenges
- To attend presentations from several relevant International CDG professionals
- To raise awareness of CDG in an International scope
- To encourage global CDG community union
- To promote translational research
It should be noted that this congress is organized in parallel with the Annual Symposium SSIEM that will be held in Lyon, 1-4 September 2015 (France).
Who will be there?
Families, key researchers, physicians, educationalists and other practitioners.
Type of sessions
- Plenary session
- Round tables (short communications)
- Lectures
Learning objectives:
(1) strengthening global awareness of these diseases,
(2) fighting geographic isolation that impacts families and professionals,
(3) sharing knowledge and experiences,
(4) potentiating visibility of the work performed by patient representatives and professionals and
(5) identifying areas in which international collaboration can have an immediate impact on the life quality of these families.
Contact:
Vanessa Ferreira, PhD, MBA
sindromecdg@gmail.com
Background:
“The 1st World Conference on Congenital Disorders of Glycosylation for Families and Professionals: a booming story of sugar trees” (2013) was fruitfully designed in a collaboration with leading experts in the field of CDG: families and professionals worked together to exchange knowledge, experiences, needs and perspectives. Our “First World CDG Conference (2013)” has welcomed more than 200 participants, formed by:
- 42 CDG families from 18 countries, and
- 70 professionals from all continents and 23 countries.
The oral presentations are available at:
https://www.youtube.com/playlist?list=PLa3xsZodHVEDRyAXVPP4imaqKKwrW79Id